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AP - A retired New York City firefighter is seeking help for his granddaughter and other children born with a rare, painful disease.
Owen Farley's granddaughter, 5-year-old Grace Peshkur of Holtsville, N.Y., has an ailment called EB -- epidermolysis (EP uh der MAH luh sis ) bullosa (buh LOH suh).
A victim's skin is compared to butterfly wings because it's so fragile that it sloughs off with a mere touch. The child must be wrapped in gauze to protect her body and lives with excruciating pain.
Farley, a former FDNY battalion chief, and supporters promoted their funding and awareness campaign on Wednesday.
On the Net:
Grace Peshkur Foundation: www.ourgrace.org
National Institutes of Health: www.ghr.nlm.nih.gov/conditionP>epidermolysisbullosasimplex
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